Well some of you might know that I'm not a patient person! Now if I'm ordering coffee at Starbucks...I can wait. If I'm waiting in a short line at the movie theater...I can wait. If I'm in a short checkout line at the grocery...I can wait. If it's something critical and involves my loved ones or my dogs...patience goes out the window. Brenda, on the other hand, is so good at keeping calm during a lot of stressful times and waiting within a reasonable period of time doesn't seem to bother her much. I just don't know how she does it. So after waiting 6 days to hear back from M D Anderson on the scheduling of Brenda's Neurosurgery consultation I was about to loose my mind. I just needed an update on the process and why it was taking so long to make an appointment. I know it's a huge medical complex that sees tons of patients each day in critical, life threatening situations, but when we called they said they try (operative word) to get out of state patients their treatment plans within 8 business days. Unfortunately that's not happening in this case. GROAN!
On Monday we did get the Neuro-radiologist appointment which will be on Feb. 11th...next Monday. So thinking we could fly home this Saturday is just not going to happen. Brenda had called Dr. Lu's office yesterday but all you get are folks voice mail which said the call would be answered within 24 hours. You know what happened...NO CALL! So we decided to start shaking the tree to get some answers. Brenda always worries that I'll be a raving lunatic on the phone but I was very tactful and stressed how important it was to hear something so we could plan ahead.
Between the 2 of us, we called about 4 different lines and eventually heard back around 2:00 that the Neuro Surgey appointment had been set. All-righty-then! That's the good news...we actually have something on their books. The bad thing is that it isn't until Feb 21st at 9:00 am. That means we'll be here another 2 weeks at least. Sure wish we could have gotten in sooner, but at least we have the appointment with Dr. Claudio Tatsui who specializes in spinal tumors and has revolutionized some unique minimally invasive treatments. That's really all we know now.
We'll try to fill up the time doing something constructive while we wait. I need to walk around and maybe if Brenda takes enough pain pills we can go over to the space center or the zoo. Yesterday all I did was watch a Netflix series and I can't do that every day...I'll go crazy! LOL!
Hope you all are doing well and praying that these doctors can offer us treatments that will kill this damn persistent disease. We miss home but know we have to stay the course.
Hugs to you call..
Trying to be patient...
Nurse Dee
Looks like you have set things in motion and now all you can do is make the most of every moment together... 'no ordinary moments' right? (Peaceful warrior!)
ReplyDeleteTrust that the best possible outcome has already been created in the future! Soak in these precious minutes together, not being at home kind of forces you not to fall back into the usual routines and gives you the opportunity to focus and look for the gift in this moment. Life is just a series of moments and the better we can feel in this moment no matter what the situation, the better our next moment will turn out to be.
I think about you guys every day, and all I see in my mind's eye is the love and laughter, strength and persistence, your wisdom and kindness... Fuck the cancer, it stands no chance where there is this much light, this much hope and faith.
I trust in your path and your doctors. My wish in this moment is for Brenda to be free of the pain so that she and you can enjoy each moment together and will be able to focus on the light, the good, the hope, your power, your future! Keep your eye and all your energy focused on that my sweet friends, nothing less than the outcome which is desired deserves your energy!
Sending you a wave of loving and healing energy to help boost your own!!! Nothing but love!